Department Statement on Cystic Fibrosis Drugs Availability

Date published: 12 November 2019


Permanent Secretary Richard Pengelly has confirmed important progress on making Cystic Fibrosis drugs available to NI patients.

cystic fibrosis drugs

Mr Pengelly said: “I would like to provide an important update on plans to provide eligible patients in Northern Ireland with access to the Cystic Fibrosis drugs Orkambi, Symkevi and Kalydeco. 

“Constructive discussions have been held with manufacturer Vertex Pharmaceuticals and the company has made a formal offer on pricing which is equivalent to the agreement reached with NHS England.

“This offer has been accepted today by the Regional Pharmaceutical Procurement Service on behalf all the Health and Social Care Trusts and a formal agreement with Vertex Pharmaceuticals will be finalised and signed in the very near future. 

“Arrangements are being put in place to ensure clinicians will be able to begin prescribing the drugs to the first eligible patients within the next few weeks.   It is estimated that in excess of 270 patients will be eligible for the new drugs under the agreement.”

Notes to editors: 

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